News /

Legislative Update from Equip for Equality – May 12, 2026

The following are disability-related bills and/or issues pending in the Illinois General Assembly that are scheduled to be heard in committee during the period of May 12-14, 2026:

 

House Appropriations-Elementary & Secondary Education Committee
May 12, 2026, 2:00 p.m.
Capitol Building, Room 118
Springfield, IL

 

HB 1879, Representative Margaret DeLeRosa

Appropriates $4,500,000 to the State Board of Education for grants to school districts to contract with organizations that directly provide students and school-based staff with mental telehealth services that are billed to Medicaid and commercial insurance plans. Effective July 1, 2025.

  • To file an electronic witness slip on HB 1879: Click

 

House Insurance Committee
May 12, 2026, 2:00 p.m.
Capitol Building, Room 115 and Virtual Room 4, www.ilga.gov
Springfield, IL

 

SB 2899, Representative Aaron M. Ortiz

Amends the Illinois Insurance Code. Provides that a group or individual policy of accident and health insurance or a managed care plan that is amended, delivered, issued, or renewed on or after January 1, 2028 that provides coverage for: habilitative services shall provide coverage for habilitative speech therapy as a treatment for stuttering, regardless of whether the stuttering is classified as developmental; rehabilitative services shall provide coverage for rehabilitative speech therapy as a treatment for stuttering; or both habilitative services and rehabilitative services shall provide coverage for habilitative speech therapy as a treatment for stuttering, regardless of whether the stuttering is classified as developmental, and shall provide coverage for rehabilitative speech therapy as a treatment for stuttering. Sets forth requirements and limitations for the coverage. Amends the State Employees Group Insurance Act of 1971, the Counties Code, the Illinois Municipal Code, the School Code, the Health Maintenance Organization Act, the Limited Health Service Organization Act, the Voluntary Health Services Plans Act, Limited Health Service Organization Act ,and the Illinois Public Aid Code to require coverage under the provisions of those Acts. Amends the State Mandates Act to require implementation without reimbursement. Amends the Illinois Public Aid Code. Provides that, subject to federal approval, for services beginning on and after July 1, 2026, the medical assistance program shall provide coverage for medically necessary rehabilitative and habilitative services for individuals under the age of 21 with an early acquired disorder that is diagnosed as a speech-language disorder, including stuttering. Effective July 1, 2026, except that provisions amending the Illinois Insurance Code and the Limited Health Service Organization Act are effective January 1, 2028.

  • To read the full text of SB 2899: Click
  • To file an electronic witness slip on SB 2899: Click

 

SB 3295, Representative Justin Cochran

Amends the Illinois Insurance Code. Provides that an individual or group policy of accident and health insurance or managed care plan that is amended, delivered, issued, or renewed on or after January 1, 2028 that provides coverage for durable medical equipment that is authorized or prescribed by a physician licensed to practice medicine in all its branches shall provide the same level of coverage for durable medical equipment that is authorized or prescribed by a different health care practitioner who lawfully prescribes or orders home medical equipment and services or uses home medical equipment and services to treat the health care practitioner’s patients. Amends the State Employees Group Insurance Act of 1971, the Counties Code, the Illinois Municipal Code, the School Code, the Health Maintenance Organization Act, the Limited Health Service Organization Act, the Voluntary Health Services Plans Act, and the Illinois Public Aid Code to establish the same requirement under the provisions of those Acts. Effective immediately.

  • To read the full text of SB 3295: Click
  • To file an electronic witness slip on SB 3295: Click

 

House Human Service Committee
May 13, 2026, 8:00 a.m.
Capitol Building, Room 118 and Virtual Room 2, www.ilga.gov
Springfield, IL

 

SUBJECT MATTER: HB 616, HB 5605

 

HB 616, HA 1, Representative Michelle Mussman

Amends the Developmental Disabilities and Mental Disabilities Services Act.  Provides that the Department of Human Services and the Department of Children and Family Services must adopt rules that  permit a licensed child care institution or  children’s group home that provides residential developmental disabilities services to youth under the age of 22 to allow a youth to continue to remain in his or her placement if an Independent Service Coordination agency that has not secured placement an adult placement for the youth by the youth’s 22nd birthday.  Makes other changes.

  • To read the full text of HB 616, HA 1: Click
  • To file an electronic witness slip on HB 616, HA 1: Click

 

HB 5605, Representative Anne Stava

Creates the Community Supported Living Arrangement Services Act. Provides that the Department of Human Services, Division of Developmental Disabilities shall work in coordination with the Department of Healthcare and Family Services to develop, implement, and operate, and to submit, through the Department of Healthcare and Family Services, amendments to the Illinois Adults with Developmental Disabilities Section 1915(c) Home and Community-Based Services Waiver, subject to approval by the Centers for Medicare and Medicaid Services. Provides for establishment of provider licensing, certification, and oversight standards for Community Supported Living-24 Hour services consistent with existing State authority for community-based residential services, but with the person’s own home not requiring licensing or Bureau of Accreditation, Licensure and Certification reviews. Provides for 24-hour availability of trained personnel for individuals with intense physical, medical, or behavioral support needs. Contains provisions regarding: covered services; enrollment; the use of tools such as the Health Risk Screening Tool; housing independence; staffing and workforce standards; phased implementation; Person-Centered Plans; dignity of risk; compliance with mandates; quality assurance; evaluations; a Community Supported Living Advisory Council; reports; fiscal issues; administrative issues; and other matters. Effective immediately.

  • To read the full text of HB 5605: Click

 

TO FILE AN ELECTRONIC WITNESS SLIP ON THE ABOVE BILLS: Click

 

SB 3322, Representative Lindsey LaPointe

Amends the Specialized Mental Health Rehabilitation Act of 2013. Provides that each consumer shall be offered at least 15 hours of treatment programming per week and encouraged to attend the treatment domains that meet the consumer’s needs, as reflected in the consumer’s treatment plans. Provides that each consumer’s program engagement and attendance shall be documented in the consumer’s clinical record, and each consumer shall be prompted to attend programming regularly as documented in the consumer’s clinical record at least quarterly. Provides that a facility under the Act shall not accept any person experiencing a medical issue that requires immediate medical intervention or treatment. Effective July 1, 2026.

  • To read the full text of SB 3322: Click
  • To file an electronic witness slip on SB 3322: Click

 

House Executive Committee
May 13, 2026, 10:00 a.m.
Capitol Building, Room 118
Springfield, IL

 

SB 3008, Representative Laura Faver Dias

Amends the Mental Health and Developmental Disabilities Administrative Act and the Rehabilitation of Persons with Disabilities Act. Required the Department of Human Services to provide informational materials about the Senator Scott Bennett ABLE Program to: persons who are placed in a facility licensed under the ID/DD Community Care Act, the MC/DD Act, or the Specialized Mental Health Rehabilitation Act of 2013; persons with disabilities who receive services funded by or administered in conjunction with the Department, including, but not limited to, home and community based services, home-based support services, PUNS services, home care services, and services at a Center for Independent Living. Provides that the informational materials shall be provided when a person first enrolls for such services and as part of any annual process required for the person to maintain eligibility for such services. Requires the Office of the State Treasurer to prepare and deliver the informational materials in an electronic format to the Department and distribute the materials to eligible persons.

  • To read the full text of SB 3008: Click
  • To file an electronic witness slip on SB 3008: Click

 

SB 3255, Representative Mary Gill

Amends the Mental Health and Developmental Disabilities Administrative Act. Delays the implementation date for the direct support professional credential pilot program to State Fiscal Year 2028 (rather than 2025). Effective immediately.

  • To read the full text of SB 3255: Click
  • To file an electronic witness slip on SB 3255: Click

 

House Immigration & Human Rights Committee
May 13, 2026, 2:00 p.m.
Capitol Building, Room 122
Springfield, IL

 

SB 3340, Representative Nabeela Syed

Creates the Protective Medical Equipment Freedom Act. Provides that all individual in the State have the right to wear protective medical equipment in any place of public accommodation where they have a lawful right to be without obligation to disclose health status or any other protected information, and no person, entity, or authority shall deny, restrict, or infringe upon this right. Provides that operators and public officials shall not discriminate against or penalize medical device wearers for exercising their right to wear protective medical equipment. Sets forth provisions concerning the discretion of the operator, requests to briefly remove protective medical equipment, exemptions from liability for the operator, and construction of the Act.

  • To read the full text of SB 3340: Click
  • To file an electronic witness slip on SB 3340: Click

 

House Appropriations-Health and Human Services Committee
May 14, 2026, 8:00 a.m.
Capitol Building, Room 114 and Virtual Room 1
Springfield, IL

 

SUBJECT MATTER: HB 5465, HB 4599, HB 3043, HB 5395, HB 4497, HB 5094, HB 5725, HB 4831

 

HB 5465, Representative Kam Buckner

Creates the Neurodegenerative Disease Patient Protection and Progress Act. Requires the Department of Public Health to convene a Neurodegenerative Disease Advisory Council within the Department. Sets forth provisions concerning the membership of the Advisory Council, terms of the members, meetings of the Advisory Council, and administrative support, and duties of the Advisory Council Provides that the Director of Public Health shall designate or hire a full-time Neurodegenerative Disease Coordinator within the Department to implement and administer the Act. Requires the Coordinator, acting through and under the supervision of the Director, and with input from the Advisory Council, to develop and publish a State plan to address neurodegenerative diseases. Sets forth required components of the Plan. Establishes a voluntary statewide clinical and population registry to collect de-identified information and, with the patient’s informed consent, limited identifying information, to (i) improve understanding of burden imposed by neurodegenerative diseases, natural history, and outcomes, (ii) facilitate public health planning and service delivery, and (iii) support research consistent with applicable privacy protections. Establishes the Neurodegenerative Disease Research Support And Grant Fund to make grants to public or private not-for-profit entities for the purpose of conducting neurodegenerative disease research. Sets forth provisions concerning equity and rural access; coordination with federal programs, academic centers, and private partners; reporting; limitations; and rulemaking. Amends the State Finance Act to make a conforming change. Effective immediately.

  • To read the full text of HB 5465: Click

 

HB 4599, Representative Maurice A. West, II

Provides that the Act may be referred to as the Nautica Horton Act. Amends the Children and Family Services Act. Requires the Department of Children and Family Services to reimburse a deceased minor’s parent or any other relative for the cost of any funeral and burial or cremation services charged to or paid by the parent or relative if the minor’s death occurred while the minor was under the care of or receiving services from the Department and the parent or relative lacks the resources to assume such costs.

  • To read the full text of HB 4599: Click

 

HB 3043, Representative Maurice A. West, II

Creates the Criminal Justice Special Advocates Program for People with Disabilities Act. Provides that subject to appropriation for this purpose, the Department of Human Services shall establish a 3-year, 5-county pilot program to provide a minimum of one criminal justice special advocate in each selected county to serve the advocacy and support needs of an individual with an intellectual disability or a developmental disability involved in the criminal justice system of the county. Contains provisions concerning the selection of counties; the qualifications and duties of criminal justice special advocates; and Department evaluation and reporting requirements.

  • To read the full text of HB 3043: Click

 

HB 5395, Representative Lisa Davis

Appropriates $2,500,000 from the General Revenue Fund to the Department of Human Services for a grant to the Illinois Prison Project for the purposes of legal support, representation, and education for incarcerated persons in the Illinois Department of Corrections. Effective July 1, 2026.

 

HB 4497, Representative Kam Buckner

Appropriates $5,000,000 from the General Revenue Fund to the Department of Human Services for a grant to Laureus Sport for Good Foundation USA for program and operating expenses for youth-development based sports initiatives. Effective July 1, 2026.

 

HB 5094, Representative Maurice A. West, II

Appropriates $15,000,000 from the General Revenue Fund to the Department of Human Services for the Pretrial Success Program. Effective July 1, 2026.

 

HB 5725, Representative Maurice A. West, II

Appropriates $500,000 from the General Revenue Fund to the Department of Human Services for a grant to Treatment Alternatives for Stronger Communities to support its pursuit of certification as a Comprehensive Community Mental Health Center. Effective July 1, 2026.

 

HB 4831, Representative Elizabeth “Lisa” Hernandez

Amends the Survivor Support and Trafficking Prevention Article of the Illinois Public Aid Code. Extends eligibility for State funded cash assistance and SNAP benefits to humanitarian immigrants, subject to available funding, if they are not eligible for such benefits solely due to citizenship or immigration status requirements but otherwise meet the financial and nonfinancial factors of eligibility. Lists the classes of humanitarian immigrants eligible for SNAP benefits under the Article. Provides that any individual residing in an institution or other setting that provides the majority of the individual’s daily meals is not eligible for SNAP benefits. Exempts persons who do not have legal authorization to work from the statutory work requirements. Makes other changes. Effective immediately.

  • To read the full text of HB 4831: Click

 

TO FILE AN ELECTRONIC WITNESS SLIP ON ANY OF THE ABOVE BILLS: CLICK

 

HB 2364, Representative Maurice A, West, II

Appropriates $7,500,000 from the General Revenue Fund to the Department of Human Services for the purpose of making a grant to the Illinois Network of Centers for Independent Living to administer and implement the Home Modification Program. Effective July 1, 2026.

  • To read the full text of HB 2364: Click
  • To file an electronic witness slip on HB 2364: Click

 

HB  3162, Representative Maurice A. West, II

Makes various appropriations from the General Revenue Fund to the Department of Human Services and the Illinois Housing Development Authority for housing programs and related services for formerly incarcerated individuals. Effective July 1, 2025.

  • To read the full text of HB 3162: Click
  • To file an electronic witness slip on HB 3162: Click

HB 3991. Representative

Appropriates $5,000,000 from the General Revenue Fund to the Department of Human Services for Statewide 211. Effective July 1, 2025.

  • To file an electronic witness slip on HB 3991: Click

 

HB 4179, Representative Charles Meier

In addition to any amounts heretofore appropriated for Community-Based Services for Persons with Developmental Disabilities and for Intermediate Care Facilities for the Developmentally Disabled and Alternative Community Programs, appropriates $10,000,000 from the General Revenue Fund to the Department of Human Services to fund transition grants awarded under the Section 14(c) transition program to assist community agencies with active or pending 14(c) certificates transition away from subminimum wages for workers with disabilities. Effective immediately.

  • To read the full text of HB 4179: Click
  • To file an electronic witness slip on HB 4179: Click

 

HB 4568, Representative Lindsey LaPointe

Appropriates $352,200,000 from the General Revenue Fund to the Department of Human Services for grants and administrative expenses of the Home Illinois Program. Effective July 1, 2026.

  • To read the full text of HB 4568: Click
  • To file an electronic witness slip on HB 4568: Click

 

HB 4586, Representative Maurice A, West, II

Appropriates $7,500,000 from the General Revenue Fund to the Department of Human Services for the purpose of making a grant to the Illinois Network of Centers for Independent Living to administer and implement the Home Modification Program. Effective July 1, 2026.

  • To read the full text of HB 4586: Click
  • To file an electronic witness slip on HB 4586: Click

 

HB 4812, Representative Lillian Jiminez

Appropriates $10,000,000 from the General Revenue Fund to the Department of Human Services for the Housing is Recovery program. Effective July 1, 2026.
  • To read the full text of HB 4812: Click
  • To file an electronic witness slip on HB 4812: Click

 

HB 4827, Representative Anna Moeller

Appropriates $40,000,000 from the General Revenue Fund to the Department of Human Services to provide on-going housing assistance for persons needing affordable housing in order to transition into less restrictive community housing from a long-term care facility regulated under Title 77, 59, or 89 of the Illinois Administrative Code. Effective July 1, 2026.

  • To read the full text of HB 4827: Click
  • To file an electronic witness slip on HB 4827: Click

 

HB 5029, Representative Maurice A. West II

Appropriates $16,358,900 from the General Revenue Fund to the Department of Human Services Rehabilitation Services Bureau for grants to independent living centers. Effective July 1, 2026.

  • To read the full text of HB 5029: Click
  • To file an electronic witness slip on HB 5029: Click

HB 5467, Representative Maurice A. West, II

Appropriates $5,000,000 from the General Revenue Fund to the Department of Human Services for Assisted Outpatient Treatment related projects. Effective July 1, 2026.

  • To read the full text of HB 5467: Click
  • To file an electronic witness slip on HB 5467: Click

 

Joint Hearing of Senate Appropriations Committee and Senate Revenue Committee
May 13, 2026, 8:30 a.m.
Capitol Building, Room 212
Springfield, IL

SUBJECT MATTER: FY27 Illinois revenue estimates, with the Illinois Department of Revenue (DOR) & the committee on Government Forecasting and Accountability (COGFA)

  • To file an electronic witness slip for the subject matter hearing: Click

 NOTE: If you wish to take any action regarding any of these bills/issues, you may wish to file an electronic witness slip and/or or submit oral or written testimony to the committee holding the hearing and/or contact the members of the committee conducting the hearing and/or the legislators in your home district.  The names, addresses, and telephone numbers of all legislators, both Representatives and Senators, can be found on the Illinois General Assembly website at www.ilga.gov.  You may check this website to find out if any of the committee hearing dates or times have been changed, which may happen upon very short notice.

 

For additional information, please contact:
Cheryl R. Jansen
Public Policy Director
cherylj2@equipforequality.org
217-303-8543

A group of school friends sitting on steps, smiling

Not sure where to begin?

We’re here to help you find the support, services, and resources you need to protect your rights or the rights of someone you love.

Start Here